Gráinne Evans
N. Ireland

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9 responses »

  1. Hi Gráinne,
    I read you story, what an accomplishment breastfeeding your sweet daughter is! Congrats! While under different circumstances, I found the way you described the challenges of breastfeeding really resonated with me and my experience teaching my micropreemie to breastfeed. I would like to quote and link back to your site a small portion (1-2 sentences) of your blog post. Would that be ok with you? I would have asked you via email but can’t seem to find one listed.
    Please let me know!
    Cheers,
    C

  2. I just found your blog. Someone mentioned it to me at work. Any more updates on your daughter? I live in Houston, Texas and we’re known around the world for our medical center. Have you looked into Texas Children’s Hospital? I’m just wondering. I haven’t had a chance to read all of your posts.

  3. Hi Ms. Evans,

    I am a speech-language pathologist and an IBCLC, and I found your breastfeeding story with Tessa so inspiring. I am presenting at a conference for speech therapists on breastfeeding, and wanted to show how babies who might seem too medically involved to breastfeed can be successful too. Could I have your permission to use some of the photos from your blog post in my presentation and share your story? I will link to your posts and credit you as the owner of the photos. Please feel free to email me with any questions (adaranblake@gmail.com). Thank you!

    • Hello Adara , thank you for getting in touch and I am happy for you to use our story and pictures for this purpose. As an update I am please to report that at 21 months oldTessa continues to breastfeed and is now more willing to keep her passy muir valve on and so her speech is really improving. She has several clear words and many more distinguishable vocalisations . I am forever grateful to have persevered to feed her when her medical team held little hope. I wish you the best for your presentation, it is such an important topic. Gráinne. (grainnekerr16@hotmail.com)

  4. You are a heroine, and a warrior of endurance, nurturing, and strength.

    When you wrote that you wondered why you of all people had been tested so strongly all i could think was because you of all people had the strength to face this challenge and show the world that anything is possible with love. you are an inspiration and a breastfeeding goddess. And your baby is beautiful…like SO beautiful…..could love her everyday. would be curios to see/hear how shes doing, but i respect your privacy.

    Thank you for sharing

  5. Hello – what an amazing family you have. So much commitment, detmination and love.
    I’m not sure if you are aware of a charity call MACS which supports children born without eyes or underdeveloped eyes. (Micropayhalmia, Anaopghalmia and Coloboma). My daughter was born with a micro eye and cataract. This charity offered me great support and still does. I know there are a few families in Ireland who are also members, it’s a UK based charity. You may already be a member!
    All the best for you and your family. You really are amazing. X

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